Just Jazz
Monday, February 13, 2012
Again...
Wednesday, December 7, 2011
The Sea of Is
Cancer leaves a mark that is never forgotten. It shapes you. It changes your sense of self, your family dynamics, your relationships, and the way you interact with the world. Nothing is left untouched.
I wish I could tell you life as the sibling of a cancer patient gets easier after treatment. No more hospital visits, no more worry about blood cell counts, no more agonizing over CAT scan results. But it won't.
There isn’t a normal to go back to. Once you’re out of crisis mode, that anchor of “How It Was” disappears, and you’re left floating in the "Sea Of Is." “Is” is hard, because you don’t know where you fit in or what life should look like.
My family is one of the lucky ones– my brother is still with us. Imagining the pain of trying to go on after losing a sibling makes my heart ache. I have stood by friends on this journey and I know the little things hurt the most: sorting through her memories and storing them away in the attic. Closing her email accounts; forgetting she’s gone and buying her a birthday present. That loss shreds the soul. Life is never the same.
Even if your sibling survived, you go through a grieving process. For me, there are triggers. Six years post treatment I find myself cringing when I get in an elevator. That familiar sound as the door closes brings back memories of riding the elevator up to the oncology unit: the endless hours of waiting, that smell of antiseptic and paper mache in the lobby, the "uplifting" quotes in that horrific font on the hospital walls that seemed to mock us. Those triggers are minor compared to the many residual effects.
My sisters and I have all shared that darkness. Cancer has crept into our art projects, our dance presentations, our sports games and our careers. We do not live as though being siblings of a cancer patient defines us, but we cannot escape the effects of that stolen time. We lost our senior year of high school, we lost the innocence of childhood, we lost our friends, we lost our freedom. Living in the shadow of someone fighting cancer is hard, but no one is allowed to talk about it because you’re not supposed to talk about yourself when your sibling could die.
After you’ve processed through the grieving, you might feel isolated, as I do, from those who have not experienced pain. Jokes and small talk come easily enough, but when it comes to deep soul searching truths, when it comes to sucking the marrow out of life, many times I feel utterly abandoned. Like no one understands what life really is about, or sees through those eyes tinged with tears and triumph. Once you’ve suffered in life, you emerge a different, deeper, more soulful person. You stand out.
Therin lies the pain and the beauty of being the sibling of a cancer patient. We can’t go back to our numbness. We must clasp tightly to the small joys of life; they are overwhelming in their simple splendor. We learn that happiness is slivers of laughter mingled with tears; joy and pain side by side. We learn to take time to cherish small moments in life, because time is all we have.
Life is not a coloring book, and there aren't lines. Mostly it is messy and con- fusing and you can only take one day at a time. We learn to be authentic, and to say what we truly mean because we don't know when or if we'll get to say it again. We learn to let people accept us as we are. These lessons are ones we could never have learned in any other way.
As the sibling of a cancer patient, you are now a part of a community of people who understand. No matter where you go, you are connected with other siblings, other cancer patients, other families who know how to be strong together.
At first, I was reluctant to be a part of the “cancer people.” It was like a club where the only rule to get in was that you had to hurt. I didn’t want to admit that was me. But once I did, I saw the strength of people who face illness with dignity, who give from the deepest part of themselves, and who live like each day is their last.
I want to give you hope that good can come from your situation. Lessons of trust, faith and love are life changing.
I hope you embrace your new community with open arms. Let them hold your hand. Let them cry with you. Let them sit with you in the dark, and wait. There is a beautiful tomorrow on the horizon. Even if it seems that life will never be what you wanted, it is still filled with small goodnesses. Hold on to the moment. Breath in the fresh air, listen to your heartbeat, watch the sunset.
Hold fast to the small intricate joys of life. If you look you will see them– even on the darkest days.
Friday, November 25, 2011
Beyond Words
This thanksgiving I am overcome by joy and gratitude, for a myriad of reasons.
I am thankful for loss, because it has taught me to truly appreciate what I have.
I am thankful for the feeling that life is crumbling around me, because it has forced me to build from the rubble.
I am thankful for second chances. Including the ones I give myself.
I am thankful for the courage to love.
I am thankful for the ability to feel air in my lungs—to Be.
I am thankful for physical, emotional and spiritual wholeness.
I am thankful for clarity, boundaries, and confidence.
I am thankful for the fragile life entrusted me, and lessons that thrust me into a wider perspective.
In the dark corners of life, light shines more brilliantly. My soul is awash with blessing.
Saturday, April 16, 2011
I sound my barbaric yawp over the rooftops of the world
A few days ago someone asked me if I was an author. Haltingly, I answered "no." Yet amidst carcasses of half written screenplays, partially outlined novels, and snippets of poetry, my true creation lies.
Since I was a little girl, all I've wanted is to be an author. The desire to create worlds, build empires and tear them down again--to splatter a canvas with people and places I've never seen or met, thrills me. I think the written word connects on such a visceral soulful level with those who chose to engage in reading.
After reading a phrase, chapter, or even just a solitary word, have you ever simply frozen? Lost, for just a moment, somewhere between the letters and the crisp paper they were printed on, you found another sliver of truth, of yourself, and something shifted. Therein lies the beauty of literature. Using one's imagination to fall into another dimension is something for which there is no equivalent. No virtual reality, video game or film can come close to the experience.
Some can bring universes into being with the stroke of guitar strings or the gentle hum of a song. Others use paint and brushes,, clay and water. Words, to me, make the most sense. And so, I will write. This time I will focus on one work (instead of the ten I've always got tumbling around in my small head).
We'll see where it goes...
Wednesday, March 16, 2011
Onward! Progress!
Tuesday, January 25, 2011
Sunday, November 14, 2010
Look
My modern day half assed Thoreau movement is in full swing.
We'll see how it goes when I log in to my computer at work tomorrow morning...
In the mean time I'm setting some serious goals. Once they're achieved, I'll probably join the rest of the world on the ol' FB.
Until later,
-Out of Touch In A Good Way
